Thank you for your many kind words and support relating to my last post. I didn't post that to garner sympathy or to raise concern of my well-being, but to explain where I've been at the past few months, both physically and mentally. Many of you know that I struggle with a sluggish digestive system that causes me to feel bloated and uncomfortable on a regular basis. I am always aware of my guts, always feeling them, and they are never happy! I tried a new medication recently that was, I hoped, going to be the one finally that would bring me relief...but it didn't work out that way, and often times when that happens it puts me on a bit of a downward spiral with my depression. Such is the way of medical ailments, and I fully realize that what I struggle with is a drop in the bucket compared to what so many are dealing with. However, I also recognize that my struggle is very real, for me.
My daughter asked me recently how old I was when I discovered that I couldn't drink milk. I answered her quickly, "I was 10", because I remember that year of my live very vividly! It took us several months to determine what was causing my bellyaches and bloating, and even once it was determined that lactose was the culprit, there were more months of learning about everything that contains lactose and how that affects me too. The thing is, not being able to drink milk is not that big a deal. Even having to avoid ice cream, cheese, all those yummy things made with milk and therefore containing lactose, is not that awful. What is awful is that, when I was 20, after suffering from months of bloating and constipation even while avoiding all those foods, it was discovered that I have a motility disorder of my intestines, as well as severe acid reflux disease (GERD), and mild gastroparesis. In more recent years, I also have tested positive regularly for small intestine bacterial overgrowth (SIBO). This means that even if I carefully avoid the lactose-laden foods that will not digest properly, I still feel yucky. All the time. All. The. Time. The other problem is the catch-22 of what to actually eat...carbs are best for the slow digestion, but carbs are the worst thing for the SIBO.
I could write pages on all the tests I've been through, the medications I've tried, the diet tricks, the naturopathic remedies, how aware I am that digestive health is related to many areas we can control (diet, exercise, etc), and so on and so forth. There will always be new things to try, and sometimes they will work. Maybe for a short time, maybe for the long-term. People will always want to share their thoughts with me, give me their tricks and tell me what they know about it. The thing is, as grateful as I am for the continued medical research into motility disorders of the guts, and for the advice, expertise, and general thoughts of others...nobody can really know how I feel and how severely that constant discomfort affects all other aspects of my life. Eating right, exercising, drinking lots of water, taking my medications, taking supplements - all of this aside, I will STILL be bloated, I will STILL be constipated, I will STILL feel generally unwell on a regular basis.
However...I am used to feeling this way, I am used to doing what I need to despite feeling this way, and I am fortunate to have a 16 year relationship with my GI doctor who knows my complete history with this gastro stuff. I AM okay! I AM going to live each day as fully as I can! I AM going to continue to do all the things I need and want to...care for my family, work, participate in church and school activities, hang out with friends and family...despite how I feel. I am NOT going to let the discomforts of my health issues be an excuse for not doing things, for not living life fully. But there will be times that I am getting through my day by sheer grit, and there will be times that I am extra cranky or despondent, that I cannot get myself going in the morning or cannot participate fully in the tasks of the day. There are times that the cloud over me becomes a cloud inside of me. This is my reality. Writing my blog helps me to process my reality, to share my struggles, to voice things that I am not always able to talk about.
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