Monday, November 20, 2017

Yes, I Have Labeled My Child

My daughter suffers from a diagnosed, very real, quite severe at times, anxiety disorder. She isn't just shy, or timid, or stubborn. She isn't just choosing to be rude, ignore people, not participate in activities. She didn't ask for this affliction. She doesn't want to be "different" from her peers. She isn't looking for special treatment, or to always have things her way. Her brain is wired differently from her peers, her thoughts and feelings run deep and strong and she cannot turn them off by choice. She didn't ask for this condition, she would rather be a happy-go-lucky, carefree kid like her friends. She doesn't enjoy being worried all the time and feeling anxious, fearful, and concerned. She didn't ask for any of it, but she has learned to own it, and she will continue to learn how to fight it when necessary, give in to it when that is what's needed, and advocate for herself, in a chaotic world that looks down upon anyone who is "different".

So yes, I have placed that label on my daughter. She has anxiety. She is different. She worries about things that most kids don't even think about; she worries about things that many adults don't even think about! She feels things deeper than the average kid. She is always on the verge of panic, not because she wants to be, but because her body is always in "fight or flight" mode. A minor change to the normal routine of her day can cause a full-fledged meltdown, and that meltdown may look very different than you might think. For her, she can be frozen in place, unable to move, to speak, barely able to breathe. Definitely unable to verbally express the fear she feels inside, the thoughts that are racing through her mind, the panic of her heart beating too fast as the adrenaline courses through her and causes her to think she's in danger. Danger of what, you may be asking. Sometimes there's an obvious answer to that; if a dog is nearby, or she's about to be called on in front of everyone but isn't prepared, or there's a teacher she's never met before in the classroom. But quite often, the danger she feels she's facing isn't tangible. It's not a real thing she sees in front of her. It's not easily identified or explained. She doesn't know why she's worried, she just is.

This is her reality. This has become our family's reality, that we need to stop and take the impact to Gracie into consideration before proceeding with anything new, that we need to be careful not to spring things on her without preparation, that we can't force her to do anything, that we need to consider the circumstances when she acts out or freezes in panic. Anxiety for her can come at any time, over any thing, and often over no specific thing. She can feel angry and out of control or she can feel sad and desperate. 

She's not alone in her battle, and I realize that she's also not alone in her disorder. Many children are dealing with mental imbalances, and many parents are trying to cope with that underlying fear that we've done something wrong. That we've somehow made our child this way, or that we somehow should be able to stop them from being this way. As I've navigated my way through parenthood over this past decade of life, I have met so many children and so many parents, and I have found that once I open up and start talking honestly and transparently about my child's struggles, I'm not alone in this journey. So many other children are struggling, and just as many other parents are thinking their kid isn't quite 'normal' but it must somehow be their fault, so they don't really talk about it. There is fear of putting a label on the behavior, because that somehow makes it more real; like once you say "my child has anxiety", you've just locked them into that box for the rest of their life. The thing is, it isn't a choice. No abnormality or disorder, be it mental or physical, temporary or long-term, is a choice. No parent chooses "different" for their child, but once "different" has been identified, it's up to us to make it "normal" for them. To learn about it and help them cope with it. To help change society's views of "normal" and "regular" and "typical" and realize that each person has their own normal; their own regular, their own typical. To teach acceptance of the variety of normals in the world, instead of fear over those who appear to be different. 

So yes, I have labeled my daughter. And in doing so, I have empowered her. I have given her an explanation for why she feels the way she does. I have given her the peace of mind that she IS normal, because anxiety is her normal. I have advocated for certain accommodations for her at school, so that she can be as comfortable as possible in the classroom and able to learn and grow academically. I have spoken up for her to other students and parents, when she's unable to speak for herself. I have taught her to accept her anxiety, and to cope with it and do her best to not let it control her. And I will continue to empower her; to be her voice when she cannot speak, to hold her hand when she's in a panic, and to dry her tears when they fall for no reason. I will not be ashamed to share her label with others when they ask what's wrong with her, or why is she acting like that. I will continue to accept her normal, and help her to understand it. I will encourage other parents facing similar situations to be honest about their struggles, to realize they haven't done anything wrong, they aren't at fault, and their child isn't different, but has their own unique normal. I encourage other adults to not be so quick to judge each other, especially in parenting, but to support each other. To offer acceptance and a listening ear, rather than judgement and unwarranted advice. To be kind to all, and to remember that we don't know the silent battles others are facing. That's okay though! We aren't called to understand, only to accept and support. 
          

Blink Of An Eye...part 2

This post was started in September 2016 and never finished. I have not had the urge to write since then, and obviously much life has been lived over those 13 months! Brief update of where we are currently at...1st and 3rd grade went by quickly, both kids did well in school, Joel enjoyed a winter season of Hot Shots Basketball, Gracie found she enjoys running and was at the top of her Marathon Kids Running Club with most miles run during club all year. We had a busy summer with as much family time as possible. Work for me has been super busy for several months now as the construction industry is non-stop, and Doug has enjoyed working in our shop and on some jobsites whenever there is a need. We are now well into 2nd and 4th grade, and somehow the holiday season is upon us. We look forward to a low-key Thanksgiving and celebrating Gracie turning 10! No promises that my blog writing will be regular, but there are some things I've been feeling the need to put down recently, as we continue to cope with Gracie's anxiety and what it means to raise a child who does not meet society's depiction of "normal". 

The months between Spring Break and Back-to-School have flown by! Yes, "in the blink of an eye", "time sure flies", "my how quickly they grow up!" and all those other cliches apply to this crazy things called life when you're raising children! We closed out the Kindergarten and 2nd grade school year in June, enjoyed a fun summer full of camping, outside play, friend playdates, family time. Yesterday the kids returned to school, 1st grade and 3rd grade, and the weather here in Oregon has felt decidedly fall-like for a few days, and I am excited to put up my Fall decor this weekend! The start of school means the start of Flag Football (Doug is coaching again), PTA activities (I'm PTA President now), Sunday School, and everyone getting back into an early-to-bed, early-to-rise routine. Both kids had a great first day of school, Gracie is super excited to have the same teacher she had last year and to be in an upstairs classroom now and Joel started a dual-language program that will have him spending half the day learning his subjects in Spanish.